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Communicating
Bad News
Communicating
bad news is an essential skill for physicians. Breaking bad news
in a direct and compassionate way can improve the patient's and
family's ability to plan and cope, encourage realistic goals and
autonomy, support the patient emotionally, strengthen the physician-patient
relationship, and foster collaboration among the patient, family,
physicians, and other professionals.
protocol for communicating bad news
The
recommended 6-step protocol has been adapted from How to Break
Bad News: A Guide for Health Care Professionals by Robert Buckman:
Step
1: Getting started
Don't
delegate the task. The patient needs to hear this news from
you.
Confirm
the medical facts of the case. Ensure that all the needed information
is available. Ensure privacy and adequate seating. A box of facial
tissues should be handy.
Allot
adequate time for the discussion. Do not slip this into a short
interval between other
critical
tasks. Prevent interruptions. Arrange to hold telephone calls and
pages. Determine who else the patient would like to have present
for the discussion. This might include family, significant others,
surrogate decision makers, and/or key members of the interdisciplinary
team (nurse, social worker, chaplain, etc).
Step
2: What does the patient know?
Start
the discussion by establishing what the patient and family know
about the patient's
health.
With this information, decide if the patient and family will be
able to comprehend the bad news.
Questions
might include:
-
What
do you understand about your illness?
-
How
would you describe your medical situation?
-
Have
you been worried about your illness or symptoms?
-
What
did Doctor X tell you when he sent you here?
-
Did
you think something serious was going on when…?
Occasionally
a patient (or a parent if the patient is a child) will fall silent
and seem completely unprepared or unable to respond. To encourage
discussion, try to clarify what the patient understands about his
or her medical history and recent investigations. If this is ineffective
and the patient remains silent, or if it appears the patient requires
more support, it may be better to reschedule the meeting for another
time.
Step
3: How much does the patient want to know?
Next,
establish what and how much each patient, or parent if the patient
is a young child, wants to know. People handle information differently,
depending on their race, ethnicity and culture, religion, and socioeconomic
class. Each person has the right to voluntarily decline to receive
any information and may designate someone else to communicate on
his or her behalf. Ask the patient and family how they would like
to receive information. If the patient prefers not to receive critical
information, establish to whom information should be given.
Possible
questions include the following:
-
If
this condition turns out to be something serious, do you want
to know?
-
Would
you like me to tell you the full details of your condition?
If not, is there somebody else you would like me to talk to?
-
Do
you want me to go over the test results now, and explain exactly
what I think is wrong?
Step
4: Sharing the information
Deliver
the information in a sensitive but straightforward manner. Say it,
then stop. Avoid delivering all of the information in a single,
steady monologue. Use simple language that is easy to understand.
Check for understanding. Use silence and body language as tools
to facilitate the discussion. Do not minimize the severity of the
situation. Well-intentioned efforts to "soften the blow"
may lead to vagueness and confusion.
You
might choose to break bad news by using language like:
-
Mr
Gonzales, I feel badly to have to tell you this, but the growth
turned out to be cancer.
-
I'm
afraid the news is not good. The biopsy showed that you have
colon cancer.
-
Unfortunately,
there's no question about the test results: it's cancer.
-
The
report is back, and it's not as we had hoped. It showed that
there is cancer in your colon.
-
I'm
afraid I have bad news. The bone marrow biopsy shows your daughter
has leukemia.
The phrase "I'm sorry" may be interpreted to imply
that the physician is responsible for the
situation. If you use the phrase, adjust it to show empathy.
For example, "I'm sorry to have to tell you this."
Step
5: Responding to feelings
Give
the patient and family time to react. Be prepared to support them
through a broad range of reactions. Listen quietly and attentively.
Acknowledge their emotions. Ask them to describe their feelings:
-
I
imagine this is difficult news…
-
You
appear to be angry. Can you tell me what you are feeling?
-
Does
this news frighten you?
-
Tell
me more about how you are feeling about what I just said.
-
What
worries you most?
-
I
wish the news were different.
-
Is
there anyone you would like for me to call?
-
I'll
help you tell your son.
Nonverbal
communication may also be very helpful. Consider touching the patient
in an appropriate, reassuring manner. Offer a drink of water, a
cup of tea, or something else that might be soothing. Allow time
for the patient and family to express all of their immediate feelings.
Don't rush them.
Step
6: Planning and follow-up
Establish
a plan for the next steps. This may include gathering additional
information or performing further tests. Treat current symptoms.
It may include helping parents to tell their child about their illness
and what treatment will be like for them.
Arrange
for appropriate referrals. Explain plans for additional treatment.
Discuss potential sources of emotional and practical support: family,
significant others, friends, social worker, spiritual counselor,
peer support group, professional therapist, hospice, home health
agency, etc.
Discuss
sources of support for an ill child's siblings.
Reassure
the patient and family that they are not being abandoned and that
the physician will be actively engaged in an ongoing plan to help.
Indicate how the patient and family can reach the physician to answer
additional questions. Establish a time for a follow-up appointment.
Ensure
that the patient will be safe when he or she leaves. Is the patient
able to drive home alone? Is the patient distraught, feeling desperate
or suicidal? Is there someone at home to provide support?guage
is a barrier
Communicating with a patient who speaks a different
language The assistance of an experienced
translator who understands medical terminology and is comfortable
translating bad news is required. Brief translators before the interview
and reassure them their role is only to translate. Verify that they
will be comfortable translating the news you are about to give.
If
possible, avoid using family members as primary translators.
When working with a translator, sit in a triangular arrangement
so that you can face and speak directly to the patient, yet still
turn to look at the translator. Speak in short segments, then give
the translator time to convey the information. Verify the patient's
and family's understanding and check for an emotional response.rognosis
Patients
frequently ask about prognosis. Consider the implications of the
prognostic information you provide. Definitive answers, such as
"You have 6 months to live," run the risk of producing
disappointment if the time proves to be less, and anger or frustration
if you have underestimated the patient's lifespan. Consider responding
by giving a range of time that encompasses an average life expectancy,
such as "hours to days," "days to weeks," "weeks
to months," "months to years," etc. Always caution
patients and families that unexpected surprises can happen. Suggest
that they get their affairs in order so they won't be so vulnerable
if something unexpected does occur. Reassure them that you will
be available to them to deal with issues and support them throughout
their illness, whatever happens. C
The
sharing of information among caregivers is critical. Maintain a
chart or log book close to the patient that can be shared by all
who provide care, including physicians. The chart or log book should
include goals for care, treatment choices, what to do in an emergency,
likes and dislikes, things to do and or not to do, and contact information
for family, physicians, and other members of the interdisciplinary
team. Ensure that data is recorded accurately and accessible to
everyone
© EPEC
Project, The Robert Wood Johnson Foundation, 1999.
The
Project to Educate Physicians on End-of-life Care comes from the
Institute for Ethics at the American Medical Association.
Emanuel
LL, von Gunten CF, Ferris FD. The Education for Physicians on End-of-life
Care
(EPEC) curriculum, 1999.
© EPEC
Project, 1999 Module 2: Communicating Bad News
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